"Mental retardation ranks with mental health as a major health, social, and economic problem in this country. It strikes our most precious asset, our children." —John F. Kennedy, February 5, 1963
At the dawn of the New Frontier, as John F. Kennedy launched his administration, intellectual disability was a neglected issue, receiving minimal state or federal funding. Few scientists were researching its causes, and even fewer doctors and educators were trained to support people with intellectual disabilities and their families. Many children and adults with intellectual disabilities were cared for in overcrowded, understaffed institutions that isolated them from their families and communities. President Kennedy, with strong support from his sister Eunice Kennedy Shriver, brought intellectual disabilities "out of the shadows" and into the public light.
A Family Matter
The Kennedy family had a personal connection to the issue; the president's sister Rosemary, sixteen months his junior, was born with intellectual disabilities. In 1946, Ambassador and Mrs. Joseph P. Kennedy established the Joseph P. Kennedy Jr. Foundation (in memory of their eldest son) to "seek the prevention of intellectual disabilities by identifying its causes, and to improve the means by which society deals with citizens who have intellectual disabilities." Eunice Kennedy Shriver began directing the foundation in 1957 and became a staunch advocate for people with intellectual disabilities and their families.
At the urging of Eunice Kennedy Shriver, Kennedy made intellectual disabilities a priority for his new administration. Before his inauguration, he created a transition task force. Once in office, he followed its recommendation to establish the National Institute of Child Health and Human Development. Still in existence today, the institute was charged with conducting and supporting research on intellectual disabilities as well as all aspects of maternal and child health and human development.
Nine months after the inauguration, at a press conference on October 11, 1961, President Kennedy announced his intention to appoint "a panel of outstanding scientists, doctors, and others to prescribe a plan of action in the field of mental retardation." He added, "The central problems of cause and prevention remain unsolved, and I believe that we as a country, in association with scientists all over the world, should make a comprehensive attack." The 27-member panel met with President Kennedy at the White House on October 18, 1961.
The President's Panel on Mental Retardation
The president charged panel members with submitting their report by the close of 1962. The President's Panel on Mental Retardation spent a year busily gathering information, interpreting data, and debating solutions. They reconciled competing agendas and submitted their report ahead of deadline. At a meeting with the president on October 16, 1962, they presented more than 100 recommendations for a comprehensive federal approach to intellectual disabilities and urged him to "think and plan boldly."
President Kennedy used the panel's report as a blueprint to address those living with intellectual disabilities. On February 5, 1963, in a "Special Message to the Congress on Mental Illness and Mental Retardation," he announced "a bold new approach" to Intellectual disabilities. He outlined recommendations from the panel including new programs for maternity and prenatal care, initiatives for moving away from "custodial institutions" to community-centered agencies, and plans for the construction of research centers that would include diagnostic, clinical, and treatment services. He also emphasized the importance of special education, training, and rehabilitation.
Legislation for Mental Health Care
Eight months later, on October 24, 1963, President Kennedy signed the Maternal and Child Health and Mental Retardation Planning Amendment to the Social Security Act, the first major legislation to combat mental illness and retardation. The amendment incorporated many of the panel's recommendations and provided planning grants to enable states to update their intellectual disabilities programs. It also increased funding for prevention through maternity and infant care.
A second piece of legislation, approved on October 31, 1963, provided funding for the construction of facilities related to the prevention, care, and treatment of people with intellectual disabilities. These included research centers that would study the causes of intellectual disabilities, university-related diagnostic treatment clinics, and community-based centers for the care of people with intellectual disabilities. The law also increased funding to "train teachers of mentally retarded and other handicapped children."
In a special ceremony to celebrate the signing of the landmark legislation, President Kennedy remarked, "It was said, in an earlier age, that the mind of a man is a far country which can neither be approached nor explored. But, today, under present conditions of scientific achievement, it will be possible for a nation as rich in human and material resources as ours to make the remote reaches of the mind accessible. The mentally ill and the mentally retarded need no longer be alien to our affections or beyond the help of our communities."
President Kennedy and his family forever changed public attitudes toward people with intellectual disabilities. Their influence on related policies and programs can still be seen today. In the twenty years following the Kennedy administration, Congress passed 116 acts or amendments providing support for people with intellectual disabilities and their families.
Established in 1966 by President Johnson, the President's Committee for People with Intellectual Disabilities (formerly called the President's Committee on Mental Retardation) still exists today, providing advice to the president and to the secretary of Health and Human Services.
Eunice Shriver continued to be a dynamic, unwavering advocate for people with intellectual disabilities her entire life. In 1968, she founded the Special Olympics, an organization dedicated to celebrating and accepting people with intellectual disabilities as athletes. Today, more than 2.5 million children and adults in 180 countries participate in the Special Olympics. Inspired by his mother's life-long commitment, Anthony Shriver co-founded Best Buddies, an organization that creates opportunities for people with intellectual and developmental disabilities.
[Please note that in this narrative the Kennedy Library has chosen to use the more recent term "intellectual disabilities" as opposed to the term "mental retardation" that was used in President Kennedy's time.]